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The CFIDS &
Fibromyalgia
Self-Help Book
Chapter 11: Managing
Feelings
Are you worried about
your future? Does being sick make you feel depressed? Do you feel
frustrated about the limits imposed by your illness? If the answer to
any of these questions is “yes,” you are not alone. Strong feelings
are normal reactions to serious illness.
Emotions like fear,
anger, grief and depression are an understandable response to having
your life turned upside down. Chronic illness isolates you from others,
creates tremendous uncertainty, brings loss and imposes limits. The
isolation is both physical and psychological, physical because of
spending large amounts of time alone and psychological because illness
makes you feel different from others. Illness brings tremendous
uncertainty, both about what each day will be like and what the future
holds. Lack of control creates frustration and feeds a sense of
helplessness. Finally, illness creates losses so pervasive that some
people say that their old self died.
Like other aspects of
long-term illness, feelings can be managed. This chapter will discuss
several specific emotions, but first I would like to make a general
comment about emotions in CFIDS and fibromyalgia.
Emotions Made More
Intense
Our illnesses appear to
make emotional reactions stronger than they were before and harder to
control. We have heard many students comment on this, such as the person
who wrote: “My emotions are much more sensitive than ever before. I
cry more easily, and I have less emotional reserve.” Another said: “Just
recognizing that emotions are heightened as a result of CFS really
helped me. Before learning that, I was quite puzzled by why I got upset
about little things.” I believe this increased intensity is part of
the physical basis of the illness.
The strength of emotions
can create a vicious cycle. Emotions can intensify symptoms, which in
turn may increase emotions like worry and depression. This process
applies even to positive emotions, as suggested in a comment from
another participant: “I cried at one of the classes, because I was so
happy to be around people who understood me. Almost immediately, I had
an attack of brain fog. The experience helped me realize that any
experience that triggers adrenaline, whether positive or negative, makes
my symptoms worse.”
Some strategies mentioned
in earlier chapters may be useful for managing emotions. The stress
reduction techniques described in Chapter 9 may be helpful. Relaxation,
for example, can short-circuit the feedback effect in which symptoms and
emotions reinforce one another. Also, changing your thinking, as
outlined in Chapter 10, may be useful. The techniques described there
have been proven to be especially helpful in counteracting the effects
of anxiety and depression. Another general approach is to identify those
situations (and sometimes people) that trigger strong emotions and plan
a strategy of response ahead of time. Often, avoiding or minimizing
stressful situations can reduce emotions. For more on this, see Chapter
9.
With those general
comments about feelings as background, let’s look next at several
specific emotions and how to manage them.
Depression
Depression is very common
in chronic illness. This should not be surprising. After all, illness
turns lives upside down, bringing great losses and tremendous
uncertainty. Also, serious illness is isolating. We spend less time with
people and more time alone. In addition, sometimes depression may be
part of our illness, with real physical causes. Prolonged stress may
alter the biochemistry of the body, causing depression.
Depression is often
divided into two types: situational and biochemical. Both may apply to
people with CFIDS and fibromyalgia. Situational depression, which means
depression that occurs as a response to a particular set of
circumstances, lends itself to self-management strategies such as those
described below. But not all depression is best handled this way. If you
are deeply depressed about your illness or you have biochemical
depression, which has its roots in the chemistry of the brain,
medication and professional help are indicated. Self-management
strategies may also be helpful.
There are many things you
can do to improve your situation. If you are depressed, you may not want
to try, but remember that depression feeds on itself. Your attitude
becomes a self-fulfilling prophecy. If you believe you can get better,
you will take actions such as the twelve listed below that have a good
chance of helping.
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Rest. Some
depression seems to be associated with physical symptoms such as
fatigue and pain. Resting to reduce these symptoms can also improve
mood. Here’s how one student described the connection: “I can
usually tell when I am doing more than my body can handle because I
start to get depressed, not to mention short tempered and cranky. If
I am well rested I am much happier.”
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Reach Out to
Others. Simple human contact is often very soothing. Family and
friends can also be important sources of support. Calling a friend
or getting together to talk, share a meal or see a movie counteracts
the sense of isolation, preoccupation with problems and the low mood
often associated with chronic illness. Just explaining yourself can
often give you perspective. As one patient said, “I find it very
helpful to talk to others who are going through the same thing. For
me, it’s important to be able to identify with others so I don’t
feel so alone in this.”
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Get Out of the
House: Just like contact with others, getting out of the house
counteracts isolation and boredom, provides stimulation and can
reduce depression.
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Consider
Medications. Tranquilizers and narcotic painkillers intensify
depression. If you are depressed, it may be in part a medication
side effect. Check with your doctor. On the other hand, if your
depression is bio-chemical in origin, you may be helped by an
anti-depressant.
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Exercise.
Exercise is a natural anti-depressant. It relieves tension, lessens
stress and improves mood. Most exercise also involves being out of
the house, thus bringing the added benefits of a change of scene.
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Practice Problem
Solving: Taking action to solve a problem lifts the spirit as
well as having practical benefits. Doing something counteracts the
sense of helplessness and replaces it with a sense of control and
power. In the words of one student, “I handle emotions better if I
do something rather than passively suffer.”
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Change Your
Thinking. Being ill over an extended period of time can be
associated with a sense of helplessness. Changing your habitual ways
of thinking to be more positive can change your mood, as explained
in Chapter 10. To improve your mood, notice what’s going well and
what you have accomplished. Reduce the impact of a low mood by
speaking to yourself in consoling voice, reminding yourself that
similar moods haven’t lasted in the past. In the words of one
student: “If I feel down, I remind myself that life is a series of
hills and valleys, and that even though I may be presently in a
valley, eventually I will be once again on a hilltop.”
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Do Something
Pleasant. Pleasurable activities counter depression and help
create a good mood. Doing something in which you can become absorbed
distracts from bad moods and puts you in touch with positive forces.
Such activities might include reading, playing or listening to
music, sitting in the sun, solving jigsaw puzzles, doing needlework,
spending time with friends, being out in nature and laughing. One
student said, “I use my fun activities to divert my down moods. I
force myself to let go of my ‘to do’ list and do something I
know will set me in a better state of mind.”
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Get Help. If
you are seriously depressed, suicidal or have been depressed for
some time, get help now. Phone a suicide prevention center, talk to
your doctor, see a psychologist or call a friend. If your problems
are less severe, consider seeing a psychotherapist. Look for one who
has experience working with people who have chronic illness. A
therapist can provide an outside view of your situation, help you to
accept your illness and support you in your efforts to improve. If
you have family tension because of illness, you might also consider
couples or family counseling.
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Establish Good
Daily Habits. Keeping to a
daily routine regardless of how you feel can help counteract
depression. Your daily round of activities will depend on the
severity of your illness, and might include things like getting
dressed, making the bed, cooking meals, taking a walk and watching a
favorite TV program. Forcing yourself to do things, even if you don’t
want to, counteracts the inertia of depression.
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Help Others. Get
involved with something larger than yourself to counteract the
isolation and preoccupation that often accompany illness and to
rebuild self-esteem. We usually feel better if we do something for
another person. Helping others might involve a regular commitment
like leading a support group or something as simple as a phone call
to an older relative or checking in with an old friend.
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Manage Your
Stress. Controlling stress can help you manage your emotions,
because stress tends to make emotions more intense. Living within
your energy envelope and managing the stresses in your life will
make emotions more manageable. |
Fear, Anxiety & Panic
Fear and anxiety often
accompany chronic illness. These reactions are common in situations in
which we feel an increased vulnerability in combination with a decreased
sense of power. Because of having a serious illness, we experience a
loss of control over our bodies and over our ability to plan and
predict. Our illness brings uncertainty about the future. We may be
unclear about our prognosis and wonder whether we will improve and, if
so, how much. We may worry about how far down we might slide and about
becoming dependent or destitute. Below you will find eight strategies
that are often helpful with fear and worry reactions. For more
suggestions, see “Fifty Tips on the Management of Worry without Using
Medication” in the book Worry by Edward Hallowell.
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Use Problem
Solving. Taking action to solve a problem has a double payoff.
You reduce or eliminate a practical concern that is bothering you.
Also, the process of taking action often reduces worry.
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Practice Stress
Reduction. Learning relaxation and other stress reduction
techniques can help reduce the intensity of your emotional reactions
and, by doing so, reduce the echo effect in which emotions and
symptoms amplify one another. A regular stress reduction practice
can also lower “background worry,” the ongoing anxiety that
results from long-term stresses like chronic illness. Relaxation is
the key. Remember: it is difficult to be worried and relaxed at the
same time.
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Change Your
Thinking. If you have a tendency to think of the worst that
might happen, you can take steps to short-circuit the process in
which your thoughts increase your anxiety. One antidote is to
retrain yourself to speak soothingly when worried, saying things
like “I’ve been here before and survived” or “this is
probably not as bad as it seems.” Also, you can do “reality
checks” by testing your fears against facts and by asking for
feedback from others. Learn to distinguish between toxic worry,
which is unproductive and paralyzing, and good worry, which helps
you plan. Act decisively to stop the former.
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Connect with Other
People. Feeling that you are part of something larger than
yourself counteracts worry. Also, contact soothes worry, distracts
you from preoccupation with problems, and provides reassurance.
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Exercise. One
of the best treatments for worry, exercise is both relaxing and
distracting.
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Pleasurable
Activity. Reading, music, good conversation and other
activities in which you can become immersed help change mood.
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Don’t Worry
Alone. The act of sharing a worry almost always reduces its size
and emotional weight. Discussion may help you find solutions, but
almost always makes the worry feel less threatening. Putting a worry
into words translates it from the realm of imagination into
something concrete and manageable. Seek out people who can offer
support and reassurance.
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Medications.
Just as drugs can help with depression, some people find that
medications help them deal with anxiety. A drug will not be a
complete solution to problems of anxiety, but it can be part of a
comprehensive response. |
Panic
About ten percent of
people with CFIDS experience an especially severe and frightening form
of fear called panic attacks. These are brief episodes of terror in
which a person may feel he or she is about to die. Symptoms may include
chest pain, heart palpitations and dizziness. In spite of overwhelming
fear, people survive but may live a life of dread, apprehensive about
when the next attack may occur. This kind of fear is treatable. For
discussions of how to conquer panic, see the books by Edward Hallowell,
Fred Friedberg and Martin Seligman listed in the References at the end
of the chapter.
Anger
Anger is another
understandable reaction to chronic illness. Being sick is frustrating,
since it brings uncertainty and loss of control. The frustrations of
illness vary from not being able to plan daily activities because of the
unpredictability of symptoms to the loss of the future you had dreamed
of. Further, irritability seems to be a symptom of CFIDS and
fibromyalgia. Many people, myself included, see “crankiness” as a
sign that they are outside their energy envelope and need to take a
break.
Self-management can help
you deal with anger. The strategies described in earlier chapters can
help by reducing the sources of frustration in your life. For example,
by using pacing you can stabilize your life, reducing the swings between
high symptoms and periods of remission, and reducing the occurrence of
irritability. Stress reduction practices can help you relax and thereby
reduce your susceptibility to frustration. In both instances, techniques
used for one purpose can have anger reduction as a side effect.
Anger can be destructive
if it is expressed in a way that drives away people who want to help or
upon whom you are dependent. Blowing up is hurtful; resignation or
giving up is also not productive. A way to respond positively to anger
is to create a situation focused on finding solutions to what is
bothering you. Pick a time to talk when both you and the other person
will be calm and not distracted. Before the conversation, ask yourself
what the other person could do to improve the situation that is making
you angry. Then when you meet, explain what is frustrating you. You may
be able to defuse anger on the other side by stating that you realize
that your illness is frustrating for everyone involved.
Here are six other
strategies used by people in our program. They focus on the principle of
finding a non-harmful way to acknowledge and express anger.
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Talk It Out. Expressing
anger by talking it out with someone who is not the target of your
frustration can release the feeling. As one student said, “The
frustration and rage I felt about becoming ill has eased
considerably since I joined a supportive group. I feel lucky to find
a place to vent, be accepted and feel understood.”
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Write. Putting
experience in words can be helpful. Psychologist James Pennebaker
has found that people have fewer health problems if they write about
traumatic events in a way that combines factual description and
emotional reactions. Giving verbal form to emotionally powerful
experiences brings understanding. A related technique is to write a
letter to the person you are mad at, and then tear it up.
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See Things from a
Fresh Perspective. The amount of anger you experience may be
related to your thoughts, to how you see your situation. Imagine,
for example, that you are waiting at a restaurant for a friend who
is a half-hour late. You feel irritated. When the friend arrives,
she reports that she was delayed because she was in a minor
accident. Suddenly your emotion changes from anger to concern. Here’s
what one student said about the effects of seeing things in new
ways: |
I’ve learned to
think about things in alternative ways. By taming my thoughts, I
find that a lot of anger has disappeared and this is a most
wonderful feeling. I have now reached the stage where most of this
new thinking is automatic.
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Plan Your
Response. If
you are irritated by comments like “I’m sure you would feel
better if you would try this new remedy,” you can prepare a
response so that such comments don’t bother you. In this case, you
might say something like “Thanks for your suggestion, but I’m
under my doctor’s care and I’m following his treatment plan.”
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Accept and
Acknowledge the Feeling. Some people report that they are able to
dissipate the power of anger and other feelings by naming them. The
exercise produces a detachment from the feeling. As one student said: |
What seems to work for
me is to think about the emotion I am having. If I am angry, I will
say ‘Ah, that is anger’. Then I say ‘I accept this anger.’
Then I describe the anger. Is it a huge anger or smoldering anger or
little anger? Then I notice how it feels in my body.
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Get Professional
Help. Sometimes talking with a counselor can ease the pressures
created by having a long-term illness. If your anger is making your
relationships more stressful, you might consider getting
professional help. Look for a therapist who specializes in helping
people with chronic illness. |
References
Friedberg, Fred. Coping
with Chronic Fatigue Syndrome. Oakland: New Harbinger, 1995.
Hallowell, Edward. Worry.
New York: Ballantine Books, 1997.
Pennebaker, James. Opening
Up: The Healing Power of Confiding in Others. New York: Avon Books,
1990.
Seligman, Martin. What
You Can Change and What You Can’t. New York: Fawcett Columbine,
1993. |
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